LUCIANA PARENTE COSTA SEGURO
Projetos de Pesquisa
Unidades Organizacionais
Instituto Central, Hospital das Clínicas, Faculdade de Medicina - Médico
LIM/17 - Laboratório de Investigação em Reumatologia, Hospital das Clínicas, Faculdade de Medicina
LIM/17 - Laboratório de Investigação em Reumatologia, Hospital das Clínicas, Faculdade de Medicina
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conferenceObject BASELINE CHARACTERISTICS OFA LONGITUDINAL, MULTINATIONAL, MULTIETHNIC STUDYOF LUPUS PATIENTS, WITH ORWITHOUT LUPUS NEPHRITIS(2023) NIETO, Romina; QUINTANA, Rosana; BORBA, Eduardo; HERNANDEZ, Lucia; FERNANDEZ, Diana; MAURELLI, Laura; ALBA, Paula; BORDON, Florencia; ARIZPE, Fernando; BERBOTTO, Guillermo; SERRANO, Rosa; BERTOLACCINI, Maria; KERSBERG, Eduardo; GARGIULO, Maria; RODRIGUEZ, Anabella; BARBOSA, Vitalina; GASPARIN, Andrese; CAVALCANTI, Fernando; ALVES, Laissa; PARENTE, Luciana; OLIVEIRA, Lucas de; NEIRA, Oscar; MASSARDO, Loreto; AROCA, Gustavo; NIETO, Ivana; MENDEZ, Paul; IGLESIAS, Antonio; ZUNIGA, Andres; VERA, Olga; PEREZ, Mario; NARES, Eduardo; AMEZCUA, Luis; GONZALEZ, Yelitza; GONZALEZ, Octavio; GALARZA, Dionicio; VAZQUEZ, Carolina; BARRIOS, Marcelo; LINARES, Magaly; REATEGUI, Cristina; QUIROS, Ana; POLANCO, Teresandris; PIZZAROSSA, Carina; REBELLA, Martin; CRESPO, Maria; DANZA, Alvaro; BONFA, Eloisa; ALARCON, Graciela; ZAZZETTI, Federico; ORILLION, Ashley; SBARIGIA, Urbano; ESTEL, Guillermo Pons- Let's Talk About Lupus. Overview of an Innovative, High-Reach, Online Program to Fill the Education Gaps of Latin Americans Living With Lupus(2022) DRENKARD, Cristina; FUENTES-SILVA, Yurilis; SEGURO, Luciana Parente Costa; REIS-NETO, Edgard Torres dos; IBANEZ, Soledad; ELERA-FITZCARRALD, Claudia; REATEGUI-SOKOLOVA, Cristina; LINHARES, Fernanda Athayde; BERMUDEZ, Witjal; FERREYRA-GARROT, Leandro; ACOSTA, Carlota; V, Carlo Caballero-Uribe; SATO, Emilia Inoue; BONFA, Eloisa; PONS-ESTEL, Bernardo A.Background/Objective The Latin American population living with lupus lacks reliable and culturally competent health education resources. We describe a Spanish and Portuguese online program to educate Latin American people about lupus. Methods An extensive network of Latin American stakeholders participated in the program design, implementation, dissemination, and evaluation. Patients and rheumatologists selected core topics. Rheumatologists prepared the content using evidence-based data. Adaptations were conducted to meet the audience's health literacy and cultural values. Social media was used to post audiovisual resources and facilitate users' interactions with peers and educators, and a Web site was created to offer in-depth knowledge. Results The most massive outreach was through Facebook, with more than 20 million people reached and 80,000 followers at 3 months, between the Spanish and Portuguese pages. Nearly 90% of followers were from Latin America. A high engagement and positive responses to a satisfaction survey indicate that Facebook users valued these resources. The Spanish and Portuguese Web sites accumulated more than 62,000 page views, and 71.7% of viewers were from Latin American. Conclusions The engagement of patients and stakeholders is critical to provide and disseminate reliable lupus education. Social media can be used to educate and facilitate interactions between people affected by lupus and qualified health care professionals. Social media-based health education has extensive and scalable outreach but is more taxing for the professional team than the Web site. However, the Web site is less likely to be used as a primary education source by Latin American people because they value social interactions when seeking lupus information.
- First Latin American clinical practice guidelines for the treatment of systemic lupus erythematosus: Latin American Group for the Study of Lupus (GLADEL, Grupo Latino Americano de Estudio del Lupus)-Pan-American League of Associations of Rheumatology (PANLAR)(2018) PONS-ESTEL, Bernardo A.; BONFA, Eloisa; SORIANO, Enrique R.; CARDIEL, Mario H.; IZCOVICH, Ariel; POPOFF, Federico; CRINITI, Juan M.; VASQUEZ, Gloria; MASSARDO, Loreto; DUARTE, Margarita; BARILE-FABRIS, Leonor A.; GARCIA, Mercedes A.; AMIGO, Mary-Carmen; ESPADA, Graciela; CATOGGIO, Luis J.; SATO, Emilia Inoue; LEVY, Roger A.; VASQUEZ, Eduardo M. Acevedo; CHACON-DIAZ, Rosa; GALARZA-MALDONADO, Claudio M.; GAMARRA, Antonio J. Iglesias; MOLINA, Jose Fernando; NEIRA, Oscar; SILVA, Clovis A.; PENA, Andrea Vargas; GOMEZ-PUERTA, Jose A.; SCOLNIK, Marina; PONS-ESTEL, Guillermo J.; UGOLINI-LOPES, Michelle R.; SAVIO, Veronica; DRENKARD, Cristina; ALVARELLOS, Alejandro J.; UGARTE-GIL, Manuel F.; BABINI, Alejandra; CAVALCANTI, Andre; LINHARES, Fernanda Athayde Cardoso; SALINAS, Maria Jezabel Haye; FUENTES-SILVA, Yurilis J.; SILVA, Ana Carolina Montandon de Oliveira e; GARNICA, Ruth M. Eraso; URIBE, Sebastian Herrera; GOMEZ-MARTIN, Diana; SEVRINI, Ricardo Robaina; QUINTANA, Rosana M.; GORDON, Sergio; FRAGOSO-LOYO, Hilda; ROSARIO, Violeta; SAURIT, Veronica; APPENZELLER, Simone; REIS NETO, Edgard Torres dos; CIEZA, Jorge; NARANJO, Luis A. Gonzalez; BELLO, Yelitza C. Gonzalez; COLLADO, Maria Victoria; SARANO, Judith; RETAMOZO, Soledad; SATTLER, Maria E.; GAMBOA-CARDENAS, Rocio V.; CAIROLI, Ernesto; CONTI, Silvana M.; AMEZCUA-GUERRA, Luis M.; SILVEIRA, Luis H.; BORBA, Eduardo F.; PERA, Mariana A.; MOREYRA, Paula B. Alba; ARTURI, Valeria; BERBOTTO, Guillermo A.; GERLING, Cristian; GOBBI, Carla A.; GERVASONI, Viviana L.; SCHERBARTH, Hugo R.; BRENOL, Joao C. Tavares; CAVALCANTI, Fernando; COSTALLAT, Lilian T. Lavras; SILVA, Nilzio A. Da; MONTICIELO, Odirlei A.; SEGURO, Luciana Parente Costa; XAVIER, Ricardo M.; LLANOS, Carolina; GUARDADO, Ruben A. Montufar; TORRE, Ignacio Garcia de la; PINEDA, Carlos; HERNANDEZ, Margarita Portela; DANZA, Alvaro; GUIBERT-TOLEDANO, Marlene; REYES, Gil Llerena; COLMAN, Maria Isabel Acosta; AQUINO, Alicia M.; MORA-TRUJILLO, Claudia S.; MUNOZ-LOUIS, Roberto; VALLADARES, Ignacio Garcia; OROZCO, Maria Celeste; BURGOS, Paula I.; BETANCUR, Graciela V.; ALARCON, Graciela S.Systemic lupus erythematosus (SLE), a complex and heterogeneous autoimmune disease, represents a significant challenge for both diagnosis and treatment. Patients with SLE in Latin America face special problems that should be considered when therapeutic guidelines are developed. The objective of the study is to develop clinical practice guidelines for Latin American patients with lupus. Two independent teams (rheumatologists with experience in lupus management and methodologists) had an initial meeting in Panama City, Panama, in April 2016. They selected a list of questions for the clinical problems most commonly seen in Latin American patients with SLE. These were addressed with the best available evidence and summarised in a standardised format following the Grading of Recommendations Assessment, Development and Evaluation approach. All preliminary findings were discussed in a second face-to-face meeting in Washington, DC, in November 2016. As a result, nine organ/system sections are presented with the main findings; an 'overarching' treatment approach was added. Special emphasis was made on regional implementation issues. Best pharmacologic options were examined for musculoskeletal, mucocutaneous, kidney, cardiac, pulmonary, neuropsychiatric, haematological manifestations and the antiphospholipid syndrome. The roles of main therapeutic options (ie, glucocorticoids, antimalarials, immunosuppressant agents, therapeutic plasma exchange, belimumab, rituximab, abatacept, low-dose aspirin and anticoagulants) were summarised in each section. In all cases, benefits and harms, certainty of the evidence, values and preferences, feasibility, acceptability and equity issues were considered to produce a recommendation with special focus on ethnic and socioeconomic aspects. Guidelines for Latin American patients with lupus have been developed and could be used in similar settings.
conferenceObject Impact of Active Lupus Nephritis in Patient-Reported Outcomes from a Latin American, Multicenter Lupus Cohort(2021) NIETO, Romina; BORBA, Eduardo Ferreira; SETTECASSE, Eugenia; FERNANDEZ-AVILA, Diana; MAURELLI, Laura; GOBBI, Carla; SAURIT, Veronica; ARIZPE, Fernando; DANIELE, Julieta; BERTOLACCINI, Maria Constanza; KERZBERG, Eduardo; GARGIULO, Maria de los Angeles; RODRIGUEZ, Anabella; LONDE, Ana Carolina; BARBOSA, Vitalina Sousa; GASPARIN, Andrese Aline; ANDRADE, Carolina Albanez A. Cunha; SEGURO, Luciana Parente Costa; MARTINS, Lucas Victoria de Oliveira; NEIRA, Oscar; LLANOS, Carolina; MASSARDO, Loreto; IGLESIAS, Antonio; ARISTIZABAL, Ivana Nieto; VASQUEZ, Gloria; MENDEZ-PATARROYO, Paul; RUEDA, Lizeth de la Hoz; PEREZ, Jose Martinez; BRIONES, Reyna Sanchez; CRISTOBAL, Mario Perez; MARTIN-NARES, Eduardo; JUAREZ-VICUNA, Yaneli; BELLO, Yelitza Gonzalez; GARCIA, Jorge Gonzalez; GALARZA-DELGADO, Dionicio; VAZQUEZ, Marcos; LANGJARH, Patricia; LINARES, Magaly Alva; REATEGUI-SOKOLOVA, Cristina; QUIROS, Armando Calvo; RODRIGUEZ, Edral; ROBAINA, Ricardo; REBELLA, Martin; ALARCN, Graciela; ORILLION, Ashley; KARYEKAR, Chetan; ZAZZETTI, Federico; PONS-ESTEL, Guillermo- BASELINE CHARACTERISTICS OF A LONGITUDINAL, MULTINATIONAL, MULTIETHNIC STUDY OF LUPUS PATIENTS, WITH OR WITHOUT LUPUS NEPHRITIS(2023) NIETO, R.; QUINTANA, R.; BORBA, E.; HERNANDEZ, L.; AVILA, D. Fernandez; TORRES, L. F. Maurelli; ALBA, P.; BORDON, F.; ARIZPE, F.; BERBOTTO, G.; MORALES, R. Serrano; BERTOLACCINI, M. C.; KERZBERG, E.; GARGIULO, M.; RODRIGUEZ, A.; BARBOSA, V.; GASPARIN, A. A.; CAVALCANTI, F.; ALVINO, L.; SEGURO, L. P. Costa; MARTINS, L. De Oliveira; NEIRA, O.; MASSARDO, L.; MARTINEZ, G. Aroca; ARISTIZABAL, I. Nieto; PATARROYO, P. A. Mendez; GAMARRA, A. Iglesias; ZUNIGA, A.; LASTRA, O. L. Vera; CRISTOBAL, M. Perez; MARTIN-NARES, E.; AMEZCUA-GUERRA, L.; BELLO, Y. C. Gonzalez; ENRIQUEZ, J. O. Gonzalez; GALARZA-DELGADO, D. A.; VAZQUEZ, C.; BARRIOS, M.; ALVA, M.; SOKOLOVA, C. Reategui; ALVA, A. Quiroz; MORA, T. Polanco; PIZZAROSSA, C.; REBELLA, M.; ESPINDOLA, M. E. Crespo; DANZA, A.; BONFA, E.; ALARCON, G. S.; ZAZZETTI, F.; ORILLION, A.; SBARIGIA, U.; PONS-ESTEL, G.
conferenceObject Baseline Characteristics of a Longitudinal, Multinational, Multiethnic Study of Lupus Patients, with or Without Lupus Nephritis(2022) NIETO, Romina; QUINTANA, Rosana; BORBA, Eduardo; HERNANDEZ, Lucia; FERNANDEZ-AVILA, Diana; MAURELLI, Laura; ALBA, Paul; BORDON, Florencia; ARIZPE, Fernando; BERBOTTA, Guillermo; SERRANO-MORALES, Rosa; BERTOLACCINI, Maria Constanza; KERZBERG, Eduardo; GARGIULO, Maria Angeles; RODRIGUEZ, Anabella; BARBOSA, Vitalina; GASPARIN, Andres; CAVALCANTI, Fernando; ALVINO, Laissa Alves; SEGURO, Luciana Parente Costa; MARTINS, Lucas Victoria de Oliveira; NIERA, Oscar; MASSARDO, Loreto; MARTINEZ, Gustavo Aroca; ARISTIZABAL, Ivana Nieto; PATARROYO, Paul Mendez; GAMARRA, Antonio Iglesias; VERA, Andres Zuniga; VERA-LASTRA, Olga-Lidia; CRISTOBAL, Mario Perez; MARTIN-NARES, Eduardo; AMEZCUA-GUERRA, Luis M.; GONZALEZ-BELLO, Yelitza; ENRIQUEZ, Octavio Gonzalez; GALARZO-DELGADO, Dionico; VAZQUEZ, Carolina; BARRIOS, Marcelo; LINARES, Magaly Alba; REATEGUI, Cristina; QUIROZ-ALVA, Ana; MORA, Teresandris Polanco; PIZZAROSSA, Carina; REBELLA, Martin; CRESPO, Maria; DANZA, Alvaro; BONFA, Eloisa Silva Dutra de Oliveira; ALARCON, Graciela; ZAZZETTI, Federico; ORILLION, Ashley; PONS-ESTEL, Guillermo; SBARIGIA, Urbano