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Please use this identifier to cite or link to this item: https://observatorio.fm.usp.br/handle/OPI/9258
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dc.contributorSistema FMUSP-HC: Faculdade de Medicina da Universidade de São Paulo (FMUSP) e Hospital das Clínicas da FMUSP-
dc.contributor.authorAMARAL, Rita Cassia-
dc.contributor.authorINACIO, Marlene-
dc.contributor.authorBRITO, Vinicius N.-
dc.contributor.authorBACHEGA, Tania A. S. S.-
dc.contributor.authorDOMENICE, Sorahia-
dc.contributor.authorARNHOLD, Ivo J. P.-
dc.contributor.authorMADUREIRA, Guiomar-
dc.contributor.authorGOMES, Larissa-
dc.contributor.authorCOSTA, Elaine M. F.-
dc.contributor.authorMENDONCA, Berenice B.-
dc.date.accessioned2015-07-01T20:17:45Z-
dc.date.available2015-07-01T20:17:45Z-
dc.date.issued2015-
dc.identifier.citationCLINICAL ENDOCRINOLOGY, v.82, n.2, p.159-164, 2015-
dc.identifier.issn0300-0664-
dc.identifier.urihttps://observatorio.fm.usp.br/handle/OPI/9258-
dc.description.abstractDisorders of sex development (DSD) result from abnormalities in the complex process of sex determination and differentiation. An important consideration to guide the assignment of social sex in newborns with ambiguous genitalia is the quality of life (QoL) of these patients in adulthood. The rarity of most DSD conditions makes it difficult to conduct a long-term follow-up of affected patients through adulthood. This review of papers on the QoL of DSD patients evaluated in developing and developed countries by qualitative and quantitative instruments revealed a large spectrum of QoL, ranging from very poor to similar to, or even better than, the normal population. A more adequate QoL was found in patients from tertiary centres, indicating that the medical care of DSD patients should be multidisciplinary and carried out by specialized teams.-
dc.description.sponsorshipConselho Nacional de Desenvolvimento Cientifico e Tecnologico - CNPq [305743/2011-2, 307922/2013-8]-
dc.language.isoeng-
dc.publisherWILEY-BLACKWELL-
dc.relation.ispartofClinical Endocrinology-
dc.rightsrestrictedAccess-
dc.subject.othercongenital adrenal-hyperplasia-
dc.subject.otherworld-health-organization-
dc.subject.other21-hydroxylase deficiency-
dc.subject.otherambiguous genitalia-
dc.subject.otherassessment whoqol-
dc.subject.otherfemale-patients-
dc.subject.otherwomen-
dc.subject.otheradults-
dc.subject.otherinstrument-
dc.subject.otherresistance-
dc.titleQuality of life of patients with 46,XX and 46,XY disorders of sex development-
dc.typearticle-
dc.rights.holderCopyright WILEY-BLACKWELL-
dc.identifier.doi10.1111/cen.12561-
dc.identifier.pmid25040878-
dc.subject.wosEndocrinology & Metabolism-
dc.type.categoryreview-
dc.type.versionpublishedVersion-
hcfmusp.description.beginpage159-
hcfmusp.description.endpage164-
hcfmusp.description.issue2-
hcfmusp.description.volume82-
hcfmusp.origemWOS-
hcfmusp.origem.idWOS:000348575000001-
hcfmusp.origem.id2-s2.0-84921553475-
hcfmusp.publisher.cityHOBOKEN-
hcfmusp.publisher.countryUSA-
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dc.description.indexMEDLINE-
dc.identifier.eissn1365-2265-
hcfmusp.citation.scopus27-
hcfmusp.scopus.lastupdate2024-03-28-
Appears in Collections:

Artigos e Materiais de Revistas Científicas - FM/MCM
Departamento de Clínica Médica - FM/MCM

Artigos e Materiais de Revistas Científicas - HC/ICHC
Instituto Central - HC/ICHC

Artigos e Materiais de Revistas Científicas - LIM/42
LIM/42 - Laboratório de Hormônios e Genética Molecular


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