Pediatric Liver Transplantation: Caregivers? Quality of Life

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art_TAVARES_Pediatric_Liver_Transplantation_Caregivers_Quality_of_Life_2022.PDF (867.36 KB)
Citações na Scopus
2
Tipo de produção
article
Data de publicação
2022
DOI
Scopus
Web of Science
PubMed
Título da Revista
ISSN da Revista
Título do Volume
Editora
KOREAN SOC PEDIATRIC GASTROENTEROLOGY & NUTRITION
Autores
TAVARES, Ana Paula Bastos
SEIXAS, Lucas Belem Pessoa de Melo Guerra
JAYME, Caren Lopes Wanderlei
SEIXAS, Renata Belem Pessoa de Melo
CARVALHO, Elisa de
Citação
PEDIATRIC GASTROENTEROLOGY HEPATOLOGY & NUTRITION, v.25, n.6, p.489-499, 2022
Projetos de Pesquisa
Unidades Organizacionais
Fascículo
Resumo
Purpose: The survival rate of pediatric patients undergoing liver transplantation has increased considerably. Despite this, the period after transplantation is still complex and poses several challenges to the recipient's family, which is responsible for care management. Recently, more attention has been paid to the impact of this complex procedure on the quality of life of caregivers. Hence, this study is aimed at assessing the quality of life of caregivers of patients who have undergone liver transplantation and the aspects that influence it. Methods: This was an observational and cross-sectional study. From November 2020 to January 2021, short-form-36 questionnaires and additional questions were given to the main caregivers of children and adolescents who underwent pediatric liver transplantation. Results: Thirty-eight questionnaires were completed and the results revealed a lower quality of life in comparison to Brazilian standards, primarily in the mental domains (41.8 +/- 14.1 vs. 51.1 +/- 2.8; p < 0.001). It did not show a significant association with socioeconomic or transplant-related factors, but it did show a negative impact on parents' perception of the child's health. Parents who reported worse health status for their children had a lower mental quality of life (44.1 +/- 13.8 vs. 33.3 +/- 12.6; p < 0.05). Conclusion: The caregivers of transplanted children have a lower quality of life than those of the local population. Psychological assistance should be routinely provided to parents for long-term follow-up to mitigate potential negative effects on the transplanted child's care.
Palavras-chave
Liver transplantation, Liver, Pediatrics, Quality oflife, Caregivers
URI
https://observatorio.fm.usp.br/handle/OPI/51629
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Artigos e Materiais de Revistas Científicas - FM/Outros