Exploring the Brazilian pediatric palliative care network: a quantitative analysis of a survey data

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1
Tipo de produção
article
Data de publicação
2023
Título da Revista
ISSN da Revista
Título do Volume
Editora
SOC PEDIATRIA SAO PAULO
Autores
FERREIRA, Esther Angelica Luiz
VALETE, Cristina Ortiz Sobrinho
COSTA, Graziela de Araujo
IGLESIAS, Simone Brasil de Oliveira
CASTRO, Ana Cristina Pugliese de
Citação
REVISTA PAULISTA DE PEDIATRIA, v.41, 2023
Projetos de Pesquisa
Unidades Organizacionais
Fascículo
Resumo
Objective: The aim of this study was to identify the characteristics of services in Brazil that compound the Brazilian Pediatric Palliative Care (PPC) Network. Methods: An online survey was conducted among representatives from PPC services. A total of 90 services from Brazil completed the online survey and answered a questionnaire about the services characterization, health professionals working in PPC, access to opioid prescription and education, and research in PPC.Results: In total, 80 services (88.9%) were created after 2010, 52 (57.9%) were in the southeast region, 56 (62.2%) were in public hospitals, 63 (70%) had up to 100 beds, and 57 (63.3%) were at the tertiary level. Notably, 88 (97.8%) had a physician in the team and 68 (75.5%) dedicated part-time to PPC. Also, 33 (36.7%) revealed concern with the care of health professionals and 36 (40%) reported difficulty or no access to opioid prescription. Research studies were reported to be conducted in 29 (32.2%) services.Conclusions: This mapping points out to a concentration of PPC services in the southeast region, with part-time professional dedication, and the need to improve professionals' care. Difficulty in opioid access was reported. It is necessary to extend PPC participation to other Brazilian regions, increase time dedicated to PPC, improve professionals' care and improve access to opioid prescription.
Palavras-chave
Palliative care, Medical education, Palliative medicine, Pediatrics, Delivery of health care, Community network
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