Please use this identifier to cite or link to this item: https://observatorio.fm.usp.br/handle/OPI/2323
Title: Validation of the Portuguese Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) in Brazil
Authors: MOORTHY, L. N.SAAD-MAGALHAES, C.SATO, J. OliveiraLEN, C. A.VASCO, M. BrandaoAPPENZELLER, S.MARINI, R.OLIVEIRA, S. K. Feitosa deRODRIGUES, M.SZTAJNBOK, F.ALMEIDA, R. Gasparello deJESUS, A. Almeida deCAMPOS, L. M.SILVA, C. A.PETERSON, M. G. E.HASSETT, A. L.WEISS, E.VERMA, S.DAHODWALA, M. Q.LEHMAN, T. J. A.
Citation: LUPUS, v.22, n.2, p.190-197, 2013
Abstract: Background and Objective: Simple Measure of the Impact of Lupus Erythematosus in Youngsters (SMILEY) is a health-related quality of life (HRQOL) assessment tool for pediatric systemic lupus erythematosus (SLE), which has been translated into Portuguese for Brazil. We are reporting preliminary data on cross-cultural validation and reliability of SMILEY in Portuguese (Brazil). Methods: In this multi-center cross-sectional study, Brazilian children and adolescents 5-18 years of age with SLE and parents participated. Children and parents completed child and parent reports of Portuguese SMILEY and Portuguese Pediatric Quality of Life Inventory (PedsQL (TM)) Generic and Rheumatology modules. Parents also completed the Childhood Health Assessment Questionnaire (CHAQ). Physicians completed the SLE disease activity index (SLEDAI), Physician's Global Assessment of disease activity (PGA) and Systemic Lupus Erythematosus International Collaborating Clinics ACR Damage Index (SDI). Results: 99 subjects (84 girls) were enrolled; 93 children and 97 parents filled out the SMILEY scale. Subjects found SMILEY relevant and easy to understand and completed SMILEY in 5-15 minutes. Brazilian SMILEY was found to have good psychometric properties (validity and reliability), and the child-parent agreement was moderate. Conclusion: SMILEY may eventually be used routinely as a research/clinical tool in Brazil. It may be also adapted for other Portuguese-speaking nations offering critical information regarding the effect of SLE on HRQOL for children with SLE. Lupus (2013) 22, 190-197.
Appears in Collections:

Artigos e Materiais de Revistas Científicas - HC/ICr
Instituto da Criança - HC/ICr

Artigos e Materiais de Revistas Científicas - LIM/36
LIM/36 - Laboratório de Pediatria Clínica


Files in This Item:
File Description SizeFormat 
art_JESUS_Validation_of_the_Portuguese_Simple_Measure_of_Impact_2013.PDF
  Restricted Access
publishedVersion (English)135.11 kBAdobe PDFView/Open Request a copy

Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.