Please use this identifier to cite or link to this item: https://observatorio.fm.usp.br/handle/OPI/45875
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dc.contributorSistema FMUSP-HC: Faculdade de Medicina da Universidade de São Paulo (FMUSP) e Hospital das Clínicas da FMUSP-
dc.contributor.authorSIECZKOWSKA, Sofia Mendes-
dc.contributor.authorASTLEY, Camilla-
dc.contributor.authorMARQUES, Isabela Gouveia-
dc.contributor.authorIRAHA, Amanda Yuri-
dc.contributor.authorFRANCO, Tathiane Christine-
dc.contributor.authorIHARA, Bianca Pires-
dc.contributor.authorLAVORATO, Sofia Simao Martins-
dc.contributor.authorLINDOSO, Livia-
dc.contributor.authorSETOUE, Debora Narumi Demitrol-
dc.contributor.authorTANIGAVA, Nicolas Yamada-
dc.contributor.authorCAMPOS, Lucia Maria Arruda-
dc.contributor.authorPEREIRA, Rosa Maria Rodrigues-
dc.contributor.authorAIKAWA, Nadia Emi-
dc.contributor.authorROSCHEL, Hamilton-
dc.contributor.authorQUEIROZ, Ligia Bruni-
dc.contributor.authorV, Guilherme Polanczyk-
dc.contributor.authorSILVA, Clovis Artur-
dc.contributor.authorGUALANO, Bruno-
dc.date.accessioned2022-04-19T12:56:25Z-
dc.date.available2022-04-19T12:56:25Z-
dc.date.issued2022-
dc.identifier.citationLUPUS, v.31, n.4, p.443-456, 2022-
dc.identifier.issn0961-2033-
dc.identifier.urihttps://observatorio.fm.usp.br/handle/OPI/45875-
dc.description.abstractObjectives To investigate the perceptions and acceptability of a home-based exercise intervention in systemic lupus erythematosus (JSLE) and juvenile idiopathic arthritis (JIA) adolescent patients during the COVID-19 pandemic, and to explore the effects of the intervention on health-related quality of life (HRQoL), sleep quality, and mental health conditions parameters. Methods This was a randomized controlled trial of a 12-week, home-based exercise training program conducted between October and December 2020. During this period, social distancing measures were in place in Brazil to contain the spread of COVID-19. Adolescent patients diagnosed with JSLE and JIA participated in the study. Health-related qualitative and quantitative data were collected before and after the follow-up. Results 21 JSLE patients and 30 JIA patients were analyzed. Six themes emerged from patients' feedback: 1) Suitability of the home-based format; 2) Appropriate trainer supervision, 3) Motivators and facilitators for the program; 4) Barriers to the program; 5) Health benefits; 6) Patients' suggestions to improve the program. Overall, data indicated that the intervention showed good acceptability and elicited improvements in the perceived HRQoL and fatigue in JIA and JSLE patients during the pandemic. However, further quantitative analyses with validated HRQoL, sleep quality, and mental health conditions instruments did not capture these benefits (p>0.05). Conclusion Our main findings based on in-depth qualitative assessments suggest that a home-based exercise training program was suitable and well-accepted by adolescents with JSLE and JIA during the COVID-19 pandemic. Nonetheless, adherence was not high, particularly among JIA patients, suggesting that facilitators and barriers identified in the current study should be explored to improve the quality of new home-based exercise programs implementation, particularly in a future emerging crisis.eng
dc.language.isoeng-
dc.publisherSAGE PUBLICATIONS LTDeng
dc.relation.ispartofLupus-
dc.rightsrestrictedAccesseng
dc.subjectpediatric rheumatic diseaseseng
dc.subjectphysical activityeng
dc.subjectphysical trainingeng
dc.subjectquality of lifeeng
dc.subject.otherquality-of-lifeeng
dc.subject.otherdifficulties questionnaireeng
dc.subject.otherphysical-activityeng
dc.subject.otherstrengthseng
dc.subject.otherclassificationeng
dc.subject.othervalidityeng
dc.subject.otherchildreneng
dc.subject.otherversioneng
dc.subject.otherpeopleeng
dc.subject.otherhealtheng
dc.titleA home-based exercise program during COVID-19 pandemic: Perceptions and acceptability of juvenile systemic lupus erythematosus and juvenile idiopathic arthritis adolescents.eng
dc.typearticleeng
dc.rights.holderCopyright SAGE PUBLICATIONS LTDeng
dc.identifier.doi10.1177/09612033221083273-
dc.identifier.pmid35264025-
dc.subject.wosRheumatologyeng
dc.type.categoryoriginal articleeng
dc.type.versionpublishedVersioneng
hcfmusp.description.articlenumber09612033221083273-
hcfmusp.description.beginpage443-
hcfmusp.description.endpage456-
hcfmusp.description.issue4-
hcfmusp.description.volume31-
hcfmusp.origemWOS-
hcfmusp.origem.idWOS:000770011300001-
hcfmusp.origem.id2-s2.0-85126178083-
hcfmusp.publisher.cityLONDONeng
hcfmusp.publisher.countryENGLANDeng
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dc.description.indexMEDLINEeng
dc.identifier.eissn1477-0962-
hcfmusp.citation.scopus1-
hcfmusp.scopus.lastupdate2022-09-15-
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Artigos e Materiais de Revistas Científicas - COVID-19
COVID-19

Artigos e Materiais de Revistas Científicas - FM/MCM
Departamento de Clínica Médica - FM/MCM

Artigos e Materiais de Revistas Científicas - FM/MPE
Departamento de Pediatria - FM/MPE

Artigos e Materiais de Revistas Científicas - FM/MPS
Departamento de Psiquiatria - FM/MPS

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Instituto Central - HC/ICHC

Artigos e Materiais de Revistas Científicas - HC/ICr
Instituto da Criança - HC/ICr

Artigos e Materiais de Revistas Científicas - LIM/17
LIM/17 - Laboratório de Investigação em Reumatologia

Artigos e Materiais de Revistas Científicas - LIM/23
LIM/23 - Laboratório de Psicopatologia e Terapêutica Psiquiátrica

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Artigos e Materiais de Revistas Científicas - LIM/39
LIM/39 - Laboratório de Processamento de Dados Biomédicos


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