Please use this identifier to cite or link to this item:
Full metadata record
DC FieldValueLanguage
dc.contributorSistema FMUSP-HC: Faculdade de Medicina da Universidade de São Paulo (FMUSP) e Hospital das Clínicas da FMUSP-
dc.contributor.authorSIECZKOWSKA, Sofia Mendes-
dc.contributor.authorASTLEY, Camilla-
dc.contributor.authorMARQUES, Isabela Gouveia-
dc.contributor.authorIRAHA, Amanda Yuri-
dc.contributor.authorFRANCO, Tathiane Christine-
dc.contributor.authorIHARA, Bianca Pires-
dc.contributor.authorLAVORATO, Sofia Simao Martins-
dc.contributor.authorLINDOSO, Livia-
dc.contributor.authorSETOUE, Debora Narumi Demitrol-
dc.contributor.authorTANIGAVA, Nicolas Yamada-
dc.contributor.authorCAMPOS, Lucia Maria Arruda-
dc.contributor.authorPEREIRA, Rosa Maria Rodrigues-
dc.contributor.authorAIKAWA, Nadia Emi-
dc.contributor.authorROSCHEL, Hamilton-
dc.contributor.authorQUEIROZ, Ligia Bruni-
dc.contributor.authorV, Guilherme Polanczyk-
dc.contributor.authorSILVA, Clovis Artur-
dc.contributor.authorGUALANO, Bruno-
dc.identifier.citationLUPUS, v.31, n.4, p.443-456, 2022-
dc.description.abstractObjectives To investigate the perceptions and acceptability of a home-based exercise intervention in systemic lupus erythematosus (JSLE) and juvenile idiopathic arthritis (JIA) adolescent patients during the COVID-19 pandemic, and to explore the effects of the intervention on health-related quality of life (HRQoL), sleep quality, and mental health conditions parameters. Methods This was a randomized controlled trial of a 12-week, home-based exercise training program conducted between October and December 2020. During this period, social distancing measures were in place in Brazil to contain the spread of COVID-19. Adolescent patients diagnosed with JSLE and JIA participated in the study. Health-related qualitative and quantitative data were collected before and after the follow-up. Results 21 JSLE patients and 30 JIA patients were analyzed. Six themes emerged from patients' feedback: 1) Suitability of the home-based format; 2) Appropriate trainer supervision, 3) Motivators and facilitators for the program; 4) Barriers to the program; 5) Health benefits; 6) Patients' suggestions to improve the program. Overall, data indicated that the intervention showed good acceptability and elicited improvements in the perceived HRQoL and fatigue in JIA and JSLE patients during the pandemic. However, further quantitative analyses with validated HRQoL, sleep quality, and mental health conditions instruments did not capture these benefits (p>0.05). Conclusion Our main findings based on in-depth qualitative assessments suggest that a home-based exercise training program was suitable and well-accepted by adolescents with JSLE and JIA during the COVID-19 pandemic. Nonetheless, adherence was not high, particularly among JIA patients, suggesting that facilitators and barriers identified in the current study should be explored to improve the quality of new home-based exercise programs implementation, particularly in a future emerging crisis.eng
dc.subjectpediatric rheumatic diseaseseng
dc.subjectphysical activityeng
dc.subjectphysical trainingeng
dc.subjectquality of lifeeng
dc.subject.otherdifficulties questionnaireeng
dc.titleA home-based exercise program during COVID-19 pandemic: Perceptions and acceptability of juvenile systemic lupus erythematosus and juvenile idiopathic arthritis adolescents.eng
dc.rights.holderCopyright SAGE PUBLICATIONS LTDeng
dc.type.categoryoriginal articleeng
hcfmusp.relation.referenceArman N, 2019, AM J PHYS MED REHAB, V98, P174, DOI 10.1097/PHM.0000000000001001eng
hcfmusp.relation.referenceAyres JRCM., 2009, CUIDADO TRABALHO INTeng
hcfmusp.relation.referenceBacchetti P, 2008, BIOMETRICS, V64, P577, DOI 10.1111/j.1541-0420.2008.01004.xeng
hcfmusp.relation.referenceBacchetti P, 2010, BMC MED, V8, DOI 10.1186/1741-7015-8-17eng
hcfmusp.relation.referenceBuysse D J, 1989, Psychiatry Res, V28, P193eng
hcfmusp.relation.referencede Sa CDC, 2021, REV PAUL PEDIATR, V39, DOI 10.1590/1984-0462/2021/39/2020159eng
hcfmusp.relation.referenceChien CL, 2011, J PHYSIOTHER, V57, P157, DOI 10.1016/S1836-9553(11)70036-4eng
hcfmusp.relation.referenceDave M, 2020, PEDIATR RHEUMATOL, V18, DOI 10.1186/s12969-020-00443-8eng
hcfmusp.relation.referenceDunton GF, 2020, BMC PUBLIC HEALTH, V20, DOI 10.1186/s12889-020-09429-3eng
hcfmusp.relation.referenceFavier LA, 2018, J RHEUMATOL, V45, P690, DOI 10.3899/jrheum.171087eng
hcfmusp.relation.referenceFazaa A, 2021, ARCH PEDIATRIE, V28, P47, DOI 10.1016/j.arcped.2020.10.008eng
hcfmusp.relation.referenceFerreira T, 2021, PSYCHOL ASSESSMENT, V33, P45, DOI 10.1037/pas0000961eng
hcfmusp.relation.referenceGarcia LFD, 2018, J PEDIAT-BRAZIL, V94, P680, DOI 10.1016/j.jped.2017.09.009eng
hcfmusp.relation.referenceGherman A, 2011, DIABETES EDUCATOR, V37, P392, DOI 10.1177/0145721711403012eng
hcfmusp.relation.referenceGilic B, 2020, CHILDREN-BASEL, V7, DOI 10.3390/children7090125eng
hcfmusp.relation.referenceGoessler KF, 2020, OBESITY, V28, P2263, DOI 10.1002/oby.23030eng
hcfmusp.relation.referenceGoodman A, 2009, J AM ACAD CHILD PSY, V48, P400, DOI 10.1097/CHI.0b013e3181985068eng
hcfmusp.relation.referenceGualano B, 2017, NAT REV RHEUMATOL, V13, P368, DOI 10.1038/nrrheum.2017.75eng
hcfmusp.relation.referenceGualano B, 2010, AUTOIMMUN REV, V9, P569, DOI 10.1016/j.autrev.2010.04.001eng
hcfmusp.relation.referenceHabibi S, 2011, INDIAN PEDIATR, V48, P879, DOI 10.1007/s13312-011-0143-5eng
hcfmusp.relation.referenceHall G, 2021, PROG CARDIOVASC DIS, V64, P108, DOI 10.1016/j.pcad.2020.04.005eng
hcfmusp.relation.referenceHochberg MC, 1997, ARTHRITIS RHEUM, V40, P1725, DOI 10.1002/art.1780400928eng
hcfmusp.relation.referenceHsieh HF, 2005, QUAL HEALTH RES, V15, P1277, DOI 10.1177/1049732305276687eng
hcfmusp.relation.referenceLopez-Gil JF, 2021, CHILDREN-BASEL, V8, DOI 10.3390/children8020083eng
hcfmusp.relation.referenceMahdi SS, 2017, JMIR REHABIL ASSIST, V4, P7, DOI [10.2196/rehab.7511, DOI 10.2196/REHAB.7511]eng
hcfmusp.relation.referenceMarques IG, 2021, CLINICS, V76, DOI 10.6061/clinics/2021/e2655eng
hcfmusp.relation.referenceMuris P, 2004, BRIT J CLIN PSYCHOL, V43, P437, DOI 10.1348/0144665042388982eng
hcfmusp.relation.referenceNg K, 2020, BMJ OPEN SPORT EXERC, V6, DOI 10.1136/bmjsem-2020-000919eng
hcfmusp.relation.referenceOrtega F, 2020, GLOB PUBLIC HEALTH, V15, P1257, DOI [10.1080/17441692.2020.1795223, 10.1080/17441692.2020.1795223CrossMarkLogoCrossMark]eng
hcfmusp.relation.referenceSafadi MAP, 2021, REV PAUL PEDIATR, V39, DOI 10.1590/1984-0462/2020/38/2020192eng
hcfmusp.relation.referencePecanha T, 2020, AM J PHYSIOL-HEART C, V318, pH1441, DOI [10.1152/ajpheart.00268.2020, 10.1152/ajpheart.00268.2020.]eng
hcfmusp.relation.referencePetty RE, 2004, J RHEUMATOL, V31, P390eng
hcfmusp.relation.referencePinto A., 2020, MEDRXIV, V9, DOI [10.1101/2020.09.09.20191395, DOI 10.1101/2020.09.09.20191395]eng
hcfmusp.relation.referencePinto AJ, 2016, ARTHRIT CARE RES, V68, P1780, DOI 10.1002/acr.22905eng
hcfmusp.relation.referencePinto AJ, 2016, CLIN RHEUMATOL, V35, P1507, DOI 10.1007/s10067-016-3234-9eng
hcfmusp.relation.referenceRavelli A, 2007, LANCET, V369, P767, DOI 10.1016/S0140-6736(07)60363-8eng
hcfmusp.relation.referenceRavens-Sieberer U, 2021, EUR CHILD ADOLES PSY, DOI 10.1007/s00787-021-01726-5eng
hcfmusp.relation.referenceRezende DAN., 2020, OBES SURG, P1eng
hcfmusp.relation.referenceRubinstein TB., 2018, CURRTREATM OPT RHEUM, V4, P55, DOI 10.1007/S40674-018-0092-4eng
hcfmusp.relation.referenceSaude SEde, 2020, UPD DAT COR CAS BRAZeng
hcfmusp.relation.referenceSieczkowska M, 2021, SEMIN ARTHRITIS RHEU, V51, P576, DOI 10.1016/j.semarthrit.2021.04.004eng
hcfmusp.relation.referenceSilva CA., 2020, CLINICS, V75, P1eng
hcfmusp.relation.referenceSims-Gould J, 2018, PEDIATR RHEUMATOL, V16, DOI 10.1186/s12969-018-0273-6eng
hcfmusp.relation.referenceTang SQ, 2021, J AFFECT DISORDERS, V279, P353, DOI 10.1016/j.jad.2020.10.016eng
hcfmusp.relation.referenceThomas RJ, 2019, CIRCULATION, V140, pE69, DOI 10.1161/CIR.0000000000000663eng
hcfmusp.relation.referenceUNESCO, 2020, ED DISR RECeng
hcfmusp.relation.referenceVarni JW, 2001, MED CARE, V39, P800, DOI 10.1097/00005650-200108000-00006eng
Appears in Collections:

Artigos e Materiais de Revistas Científicas - COVID-19

Artigos e Materiais de Revistas Científicas - FM/MCM
Departamento de Clínica Médica - FM/MCM

Artigos e Materiais de Revistas Científicas - FM/MPE
Departamento de Pediatria - FM/MPE

Artigos e Materiais de Revistas Científicas - FM/MPS
Departamento de Psiquiatria - FM/MPS

Artigos e Materiais de Revistas Científicas - HC/ICHC
Instituto Central - HC/ICHC

Artigos e Materiais de Revistas Científicas - HC/ICr
Instituto da Criança - HC/ICr

Artigos e Materiais de Revistas Científicas - LIM/17
LIM/17 - Laboratório de Investigação em Reumatologia

Artigos e Materiais de Revistas Científicas - LIM/23
LIM/23 - Laboratório de Psicopatologia e Terapêutica Psiquiátrica

Artigos e Materiais de Revistas Científicas - LIM/36
LIM/36 - Laboratório de Pediatria Clínica

Artigos e Materiais de Revistas Científicas - LIM/39
LIM/39 - Laboratório de Processamento de Dados Biomédicos

Files in This Item:
File Description SizeFormat 
  Restricted Access
publishedVersion (English)703.61 kBAdobe PDFView/Open Request a copy

Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.