Please use this identifier to cite or link to this item: https://observatorio.fm.usp.br/handle/OPI/46278
Title: Counseling about sudden unexpected death in epilepsy (SUDEP): A global survey of neurologists' opinions
Authors: ASADI-POOYA, Ali A.TRINKA, EugenBRIGO, FrancescoHINGRAY, CoralineKARAKIS, IoannisLATTANZI, SimonaVALENTE, Kette D.CONTRERAS, GuilcaTURUSPEKOVA, Saule T.KISHK, Nirmeen AdelALJANDEEL, GhaiebFARAZDAGHI, MohsenLOPEZ, Yamile CalleKISSANI, NajibTRIKI, ChahnezKRAEMER, GunterSURGES, RainerMESRAOUA, BoulenouarYU, Hsiang-YuDAZA-RESTREPO, AniluALSAADI, TaoufikAL-ASMI, AbdullahKUTLUBAEV, Mansur A.PRETORIUS, ChrismaJUSUPOVA, AselKHACHATRYAN, Samson G.RANGANATHAN, Lakshmi NarasimhanASHKANANI, AbdulazizTOMSON, TorbjornGIGINEISHVILI, David
Citation: EPILEPSY & BEHAVIOR, v.128, article ID 108570, 7p, 2022
Abstract: Objective: To investigate the opinions and attitudes of neurologists on the counseling about sudden unex-pected death in epilepsy (SUDEP) worldwide. Methods: Practicing neurologists from around the world were invited to participate in an online survey. On February 18th, 2021, we emailed an invitation including a questionnaire (using Google-forms) to the lead neurologists from 50 countries. The survey anonymously collected the demographic data of the par-ticipants and answers to the questions about their opinions and attitudes toward counseling about SUDEP. Results: In total, 1123 neurologists from 27 countries participated; 41.5% of the respondents reported they discuss the risk of SUDEP with patients and their care-givers only rarely. Specific subgroups of patients who should especially be told about this condition were considered to be those with poor anti-seizure medication (ASM) adherence, frequent tonic-clonic seizures, or with drug-resistant epilepsy. The propensity to tell all patients with epilepsy (PWE) about SUDEP was higher among those with epilepsy fellowship. Having an epilepsy fellowship and working in an academic setting were factors associated with a comfortable discussion about SUDEP. There were significant differences between the world regions. Conclusion: Neurologists often do not discuss SUDEP with patients and their care-givers. While the results of this study may not be representative of practitioners in each country, it seems that there is a severe dissociation between the clinical significance of SUDEP and the amount of attention that is devoted to this matter in daily practice by many neurologists around the world.
Appears in Collections:

Artigos e Materiais de Revistas Científicas - HC/IPq
Instituto de Psiquiatria - HC/IPq

Artigos e Materiais de Revistas Científicas - LIM/21
LIM/21 - Laboratório de Neuroimagem em Psiquiatria


Files in This Item:
File Description SizeFormat 
art_ASADI-POOYA_Counseling_about_sudden_unexpected_death_in_epilepsy_SUDEP_2022.PDF
  Restricted Access
publishedVersion (English)309.73 kBAdobe PDFView/Open Request a copy

Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.