Please use this identifier to cite or link to this item: https://observatorio.fm.usp.br/handle/OPI/46278
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dc.contributorSistema FMUSP-HC: Faculdade de Medicina da Universidade de São Paulo (FMUSP) e Hospital das Clínicas da FMUSP-
dc.contributor.authorASADI-POOYA, Ali A.-
dc.contributor.authorTRINKA, Eugen-
dc.contributor.authorBRIGO, Francesco-
dc.contributor.authorHINGRAY, Coraline-
dc.contributor.authorKARAKIS, Ioannis-
dc.contributor.authorLATTANZI, Simona-
dc.contributor.authorVALENTE, Kette D.-
dc.contributor.authorCONTRERAS, Guilca-
dc.contributor.authorTURUSPEKOVA, Saule T.-
dc.contributor.authorKISHK, Nirmeen Adel-
dc.contributor.authorALJANDEEL, Ghaieb-
dc.contributor.authorFARAZDAGHI, Mohsen-
dc.contributor.authorLOPEZ, Yamile Calle-
dc.contributor.authorKISSANI, Najib-
dc.contributor.authorTRIKI, Chahnez-
dc.contributor.authorKRAEMER, Gunter-
dc.contributor.authorSURGES, Rainer-
dc.contributor.authorMESRAOUA, Boulenouar-
dc.contributor.authorYU, Hsiang-Yu-
dc.contributor.authorDAZA-RESTREPO, Anilu-
dc.contributor.authorALSAADI, Taoufik-
dc.contributor.authorAL-ASMI, Abdullah-
dc.contributor.authorKUTLUBAEV, Mansur A.-
dc.contributor.authorPRETORIUS, Chrisma-
dc.contributor.authorJUSUPOVA, Asel-
dc.contributor.authorKHACHATRYAN, Samson G.-
dc.contributor.authorRANGANATHAN, Lakshmi Narasimhan-
dc.contributor.authorASHKANANI, Abdulaziz-
dc.contributor.authorTOMSON, Torbjorn-
dc.contributor.authorGIGINEISHVILI, David-
dc.date.accessioned2022-04-19T13:10:27Z-
dc.date.available2022-04-19T13:10:27Z-
dc.date.issued2022-
dc.identifier.citationEPILEPSY & BEHAVIOR, v.128, article ID 108570, 7p, 2022-
dc.identifier.issn1525-5050-
dc.identifier.urihttps://observatorio.fm.usp.br/handle/OPI/46278-
dc.description.abstractObjective: To investigate the opinions and attitudes of neurologists on the counseling about sudden unex-pected death in epilepsy (SUDEP) worldwide. Methods: Practicing neurologists from around the world were invited to participate in an online survey. On February 18th, 2021, we emailed an invitation including a questionnaire (using Google-forms) to the lead neurologists from 50 countries. The survey anonymously collected the demographic data of the par-ticipants and answers to the questions about their opinions and attitudes toward counseling about SUDEP. Results: In total, 1123 neurologists from 27 countries participated; 41.5% of the respondents reported they discuss the risk of SUDEP with patients and their care-givers only rarely. Specific subgroups of patients who should especially be told about this condition were considered to be those with poor anti-seizure medication (ASM) adherence, frequent tonic-clonic seizures, or with drug-resistant epilepsy. The propensity to tell all patients with epilepsy (PWE) about SUDEP was higher among those with epilepsy fellowship. Having an epilepsy fellowship and working in an academic setting were factors associated with a comfortable discussion about SUDEP. There were significant differences between the world regions. Conclusion: Neurologists often do not discuss SUDEP with patients and their care-givers. While the results of this study may not be representative of practitioners in each country, it seems that there is a severe dissociation between the clinical significance of SUDEP and the amount of attention that is devoted to this matter in daily practice by many neurologists around the world.eng
dc.description.sponsorshipShiraz University of Medical Sciences, Shiraz, Iran-
dc.language.isoeng-
dc.publisherACADEMIC PRESS INC ELSEVIER SCIENCEeng
dc.relation.ispartofEpilepsy & Behavior-
dc.rightsrestrictedAccesseng
dc.subjectEpilepsyeng
dc.subjectDeatheng
dc.subjectMortalityeng
dc.subjectSeizureeng
dc.subjectSUDEPeng
dc.subject.otherseizureeng
dc.titleCounseling about sudden unexpected death in epilepsy (SUDEP): A global survey of neurologists' opinionseng
dc.typearticleeng
dc.rights.holderCopyright ACADEMIC PRESS INC ELSEVIER SCIENCEeng
dc.identifier.doi10.1016/j.yebeh.2022.108570-
dc.identifier.pmid35093831-
dc.subject.wosBehavioral Scienceseng
dc.subject.wosClinical Neurologyeng
dc.subject.wosPsychiatryeng
dc.type.categoryoriginal articleeng
dc.type.versionpublishedVersioneng
hcfmusp.author.externalASADI-POOYA, Ali A.:Shiraz Univ Med Sci, Epilepsy Res Ctr, Shiraz, Iran; Thomas Jefferson Univ, Dept Neurol, Jefferson Comprehens Epilepsy Ctr, Philadelphia, PA 19107 USA-
hcfmusp.author.externalTRINKA, Eugen:Paracelsus Med Univ, Christian Doppler Med Ctr, Dept Neurol, A-5020 Salzburg, Austria; Paracelsus Med Univ, A-5020 Salzburg, Austria; Ctr Cognit Neurosci, A-5020 Salzburg, Austria; Paracelsus Med Univ, Christian Doppler Med Ctr, Neurosci Inst, European Referencenetwork EpiCARE, A-5020 Salzburg, Austria; UMIT Univ Hlth Sci Med Informat & Technol, Dept Publ Hlth Hlth Serv Res & Hlth Technol Asses, Hall In Tirol, Austria; Karl Landsteiner Inst Neurorehabil & Space Neurol, Salzburg, Austria-
hcfmusp.author.externalBRIGO, Francesco:Hosp Merano SABES ASDAA, Dept Neurol, Merano Meran, Italy-
hcfmusp.author.externalHINGRAY, Coraline:CPN, Pole Univ Adulte Grand Nancy, Laxou, France-
hcfmusp.author.externalKARAKIS, Ioannis:Emory Univ, Sch Med, Dept Neurol, Atlanta, GA 30322 USA-
hcfmusp.author.externalLATTANZI, Simona:Marche Polytech Univ, Dept Expt & Clin Med, Neurol Clin, Ancona, Italy-
hcfmusp.author.externalCONTRERAS, Guilca:La Trinidad Med Ctr, Epilepsy Unit, Caracas, Venezuela-
hcfmusp.author.externalTURUSPEKOVA, Saule T.:Asfendiyarov Kazakh Natl Med Univ, Dept Nervous Dis, Alma Ata, Kazakhstan-
hcfmusp.author.externalKISHK, Nirmeen Adel:Cairo Univ, Cairo Univ Epilepsy Unit CUEU, Sch Med, Dept Neurol, Cairo, Egypt-
hcfmusp.author.externalALJANDEEL, Ghaieb:Fac Epileptol, Iraqi Council Med Specializat, Baghdad, Iraq-
hcfmusp.author.externalFARAZDAGHI, Mohsen:Shiraz Univ Med Sci, Epilepsy Res Ctr, Shiraz, Iran-
hcfmusp.author.externalLOPEZ, Yamile Calle:Univ Antioquia, Fdn Clin Norte Neuroclin, Neurol Sect, Medellin, Colombia-
hcfmusp.author.externalKISSANI, Najib:Cadi Ayyad Univ, Fac Med, Lab Clin & Expt Neurosci, Marrakech, Morocco; Teaching Hosp Mohammed VI, Dept Neurol, Marrakech, Morocco-
hcfmusp.author.externalTRIKI, Chahnez:Sfax Univ, Hedi Chaker Univ Hosp, Sfax Med Sch, Child Neurol Dept,LR19ES15, Sfax, Tunisia-
hcfmusp.author.externalKRAEMER, Gunter:Neuroctr Bellevue, Zurich, Switzerland; Univ Hosp, Epilepsy Ctr, Frankfurt, Germany-
hcfmusp.author.externalSURGES, Rainer:Univ Hosp Bonn, Dept Epileptol, Bonn, Germany-
hcfmusp.author.externalMESRAOUA, Boulenouar:Hamad Med Corp, Neurosci Dept, Doha, Qatar; Weill Cornell Med Coll, Doha, Qatar-
hcfmusp.author.externalYU, Hsiang-Yu:Taipei Vet Gen Hosp, Neurol Inst, Dept Neurol, Taipei, Taiwan; Natl Yang Ming Chiao Tung Univ, Sch Med, Coll Med, Taipei, Taiwan; Natl Yang Ming Chiao Tung Univ, Brain Res Ctr, Taipei, Taiwan-
hcfmusp.author.externalDAZA-RESTREPO, Anilu:EL Cruce Dr Nestor Carlos Kirchner Hosp, Epilepsy Ctr, ENyS CONICET, Buenos Aires, DF, Argentina-
hcfmusp.author.externalALSAADI, Taoufik:Amer Ctr Psychiat & Neurol, Dept Neurol, Dubai, U Arab Emirates-
hcfmusp.author.externalAL-ASMI, Abdullah:Sultan Qaboos Univ, Coll Med & Hlth Sci, Dept Med, Neurol Unit, Muscat, Oman; Sultan Qaboos Univ, Sultan Qaboos Univ Hosp, Muscat, Oman-
hcfmusp.author.externalKUTLUBAEV, Mansur A.:Bashkir State Med Univ, Dept Neurol, Ufa, Russia-
hcfmusp.author.externalPRETORIUS, Chrisma:Stellenbosch Univ, Dept Psychol, Stellenbosch, South Africa-
hcfmusp.author.externalJUSUPOVA, Asel:Kyrgyz State Med Acad, Neurol & Clin Genet Dept, Bishkek, Kyrgyzstan-
hcfmusp.author.externalKHACHATRYAN, Samson G.:Natl Inst Hlth, Dept Neurol & Neurosurg, Yerevan, Armenia-
hcfmusp.author.externalRANGANATHAN, Lakshmi Narasimhan:Madras Med Coll & Govt Gen Hosp, Inst Neurol, Chennai, Tamil Nadu, India-
hcfmusp.author.externalASHKANANI, Abdulaziz:New Ahmadi Hosp, Internal Med Team, Al Ahmadi, Kuwait-
hcfmusp.author.externalTOMSON, Torbjorn:Karolinska Inst, Dept Clin Neurosci, Stockholm, Sweden-
hcfmusp.author.externalGIGINEISHVILI, David:Javakhishvili Tbilisi State Univ, Inst Neurol, Dept Neurol & Neurosurg, Tbilisi, Georgia-
hcfmusp.description.articlenumber108570-
hcfmusp.description.volume128-
hcfmusp.origemWOS-
hcfmusp.origem.idWOS:000761035600011-
hcfmusp.origem.id2-s2.0-85123628518-
hcfmusp.publisher.citySAN DIEGOeng
hcfmusp.publisher.countryUSAeng
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dc.description.indexMEDLINEeng
dc.identifier.eissn1525-5069-
hcfmusp.citation.scopus2-
hcfmusp.scopus.lastupdate2022-08-11-
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