Disclosing the diagnosis of schizophrenia: A pilot study of the 'Coming Out Proud' intervention

Página do item simplificado
dc.contributorSistema FMUSP-HC: Faculdade de Medicina da Universidade de São Paulo (FMUSP) e Hospital das Clínicas da FMUSP
dc.contributor.authorSETTI, Viviane Piagentini Candal
dc.contributor.authorLOCH, Alexandre Andrade
dc.contributor.authorMODELLI, Arlete
dc.contributor.authorROCCA, Cristiana Castanho de Almeida
dc.contributor.authorHUNGERBUEHLER, Ines
dc.contributor.authorBILT, Martinus Theodorus van de
dc.contributor.authorGATTAZ, Wagner Farid
dc.contributor.authorROESSLER, Wulf
dc.date.accessioned2019-06-26T17:32:03Z
dc.date.available2019-06-26T17:32:03Z
dc.date.issued2019
dc.description.abstractBackground: Schizophrenia is one of the most stigmatized psychiatric disorders, and disclosing it is often a source of stress to individuals with the disorder. The Coming Out Proud (COP) group intervention is designed to reduce the stigma's negative impact and help participants decide if they want to disclose their disorder. Aims: To assess the effect of the COP intervention in individuals with the diagnosis of schizophrenia. Methods: A pilot study of 3 2-hour group lessons (6-12 participants) per week. Individuals were selected from three specialized outpatient services in Sao Paulo, Brazil; 46 people were willing to participate, 11 dropped out during the intervention and 4 were excluded due to low intelligence quotient (IQ), resulting in a final sample of 31 participants. Outcomes were assessed before (T0/baseline) and after (T1/directly) after the COP intervention, and at 3-week follow-up (T2/3 weeks after T1). We applied eight scales, of which four scales are analyzed in this article (Coming Out with Mental Illness Scale (COMIS), Cognitive Appraisal of Stigma as a Stressor (CogApp), Self-Stigma of Mental Illness Scale-Short Form (SSMIS) and Perceived Devaluation-Discrimination Questionnaire (PDDQ)). Results: People who completed the COP intervention showed a significant increase in the decision to disclose their diagnosis (22.5% in T0 vs 67.7% in T2). As to the perception of stigma as a stressor, mean values significantly increased after the intervention (T0 = 3.83, standard deviation (SD) = .92 vs T2 = 4.44, SD = 1.05; p = .006). Two results had marginal significance: self-stigma was reduced (T0 = 3.10, SD = 1.70 vs T2 = 2.73, SD = 1.87; p = .063), while perceived discrimination increased (T0 = 2.68, SD = .55 vs T2 = 2.93, SD = .75; p = .063). Conclusion: This study suggests that the COP group intervention facilitated participants' disclosure decisions, and the increasing awareness of stigma as a stressor in life may have facilitated their decision to eventually disclose their disorder. The results raise questions that require further analysis, taking sociocultural factors into account, as stigma is experienced differently across cultures.eng
dc.description.indexMEDLINEeng
dc.identifier.citationINTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY, v.65, n.3, p.244-251, 2019
dc.identifier.doi10.1177/0020764019840057
dc.identifier.eissn1741-2854
dc.identifier.issn0020-7640
dc.identifier.urihttps://observatorio.fm.usp.br/handle/OPI/32522
dc.language.isoeng
dc.publisherSAGE PUBLICATIONS LTDeng
dc.relation.ispartofInternational Journal of Social Psychiatry
dc.rightsrestrictedAccesseng
dc.rights.holderCopyright SAGE PUBLICATIONS LTDeng
dc.subjectSchizophreniaeng
dc.subjectprejudiceeng
dc.subjectsocial stigmaeng
dc.subjectmental healtheng
dc.subjectstigma and schizophreniaeng
dc.subject.otherquality-of-lifeeng
dc.subject.othermental-illnesseng
dc.subject.otherself-stigmaeng
dc.subject.otherinternalized stigmaeng
dc.subject.otherexpressed emotioneng
dc.subject.otherpeopleeng
dc.subject.otherattitudeseng
dc.subject.otheresteemeng
dc.subject.otherexperienceseng
dc.subject.wosPsychiatryeng
dc.titleDisclosing the diagnosis of schizophrenia: A pilot study of the 'Coming Out Proud' interventioneng
dc.typearticleeng
dc.type.categoryoriginal articleeng
dc.type.versionpublishedVersioneng
dspace.entity.typePublication
hcfmusp.author.externalHUNGERBUEHLER, Ines:Univ Sao Paulo, Hosp Clin, Lab Neurosci LIM 27, Dept & Inst Psychiat, Rua Dr Ovidio Pires de Campos 785, BR-05403903 Sao Paulo, Brazil
hcfmusp.citation.scopus14
hcfmusp.contributor.author-fmusphcVIVIANE PIAGENTINI CANDAL SETTI
hcfmusp.contributor.author-fmusphcALEXANDRE ANDRADE LOCH
hcfmusp.contributor.author-fmusphcARLETE MODELLI
hcfmusp.contributor.author-fmusphcCRISTIANA CASTANHO DE ALMEIDA ROCCA
hcfmusp.contributor.author-fmusphcMARTINUS THEODORUS VAN DE BILT
hcfmusp.contributor.author-fmusphcWAGNER FARID GATTAZ
hcfmusp.description.beginpage244
hcfmusp.description.endpage251
hcfmusp.description.issue3
hcfmusp.description.volume65
hcfmusp.origemWOS
hcfmusp.origem.pubmed30915887
hcfmusp.origem.scopus2-s2.0-85063603933
hcfmusp.origem.wosWOS:000468918800007
hcfmusp.publisher.cityLONDONeng
hcfmusp.publisher.countryENGLANDeng
hcfmusp.relation.referenceAlexander LA, 2003, J MENTAL HLTH, V12, P271, DOI 10.1080/0963823031000118267eng
hcfmusp.relation.referenceAmerican Psychiatric Association, 2013, DIAGNOSTIC STAT MANUeng
hcfmusp.relation.referenceAngermeyer Matthias C, 2002, World Psychiatry, V1, P21eng
hcfmusp.relation.referenceAngermeyer MC, 2006, ACTA PSYCHIAT SCAND, V113, P163, DOI 10.1111/j.1600-0447.2005.00699.xeng
hcfmusp.relation.referenceAngermeyer MC, 2004, ACTA PSYCHIAT SCAND, V109, P420, DOI 10.1111/j.1600-0047.2004.00310.xeng
hcfmusp.relation.referenceBhugra D, 2005, PLOS MED, V2, P372, DOI 10.1371/journal.pmed.0020151eng
hcfmusp.relation.referenceClement S, 2012, BMC PSYCHIATRY, V12, DOI 10.1186/1471-244X-12-36eng
hcfmusp.relation.referenceCorrigan P. W., 2014, COMING OUT PROUD ELIeng
hcfmusp.relation.referenceCorrigan P. W., 2004, BEAT STIGMA DISCRIMIeng
hcfmusp.relation.referenceCorrigan PW, 2006, J SOC CLIN PSYCHOL, V25, P875, DOI 10.1521/jscp.2006.25.8.875eng
hcfmusp.relation.referenceCorrigan PW, 2015, PSYCHIAT RES, V229, P148, DOI 10.1016/j.psychres.2015.07.053eng
hcfmusp.relation.referenceCorrigan PW, 2012, PSYCHIAT RES, V199, P65, DOI 10.1016/j.psychres.2012.04.009eng
hcfmusp.relation.referenceCorrigan PW, 2010, J COMMUNITY PSYCHOL, V38, P259, DOI 10.1002/jcop.20363eng
hcfmusp.relation.referenceCorrigan PW, 2002, CLIN PSYCHOL-SCI PR, V9, P35, DOI 10.1093/clipsy/9.1.35eng
hcfmusp.relation.referenceCrisp Arthur, 2005, World Psychiatry, V4, P106eng
hcfmusp.relation.referenceDinos S, 2004, BRIT J PSYCHIAT, V184, P176, DOI 10.1192/bjp.184.2.176eng
hcfmusp.relation.referenceHengartner MP, 2012, REV PSIQ CLIN-BRAZIL, V39, P115eng
hcfmusp.relation.referenceKARNO M, 1987, J NERV MENT DIS, V175, P143, DOI 10.1097/00005053-198703000-00004eng
hcfmusp.relation.referenceKnight MTD, 2006, BEHAV COGN PSYCHOTH, V34, P305, DOI 10.1017/S1352465805002705eng
hcfmusp.relation.referenceLEHMAN AF, 1988, EVAL PROGRAM PLANN, V11, P51, DOI 10.1016/0149-7189(88)90033-Xeng
hcfmusp.relation.referenceLINK BG, 1989, AM SOCIOL REV, V54, P400, DOI 10.2307/2095613eng
hcfmusp.relation.referenceLINK BG, 1991, J HEALTH SOC BEHAV, V32, P302, DOI 10.2307/2136810eng
hcfmusp.relation.referenceLoch A. A., 2013, THESISeng
hcfmusp.relation.referenceLopez SR, 2004, J ABNORM PSYCHOL, V113, P428, DOI 10.1037/0021-843x.113.3.428eng
hcfmusp.relation.referenceLucksted A, 2011, PSYCHIATR REHABIL J, V35, P51, DOI 10.2975/35.1.2011.51.54eng
hcfmusp.relation.referenceLundberg B, 2008, INT J SOC PSYCHIATR, V54, P47, DOI 10.1177/0020764007082345eng
hcfmusp.relation.referenceOliveira SEH, 2015, PSYCHIAT RES, V229, P167, DOI 10.1016/j.psychres.2015.07.047eng
hcfmusp.relation.referencePachankis JE, 2007, PSYCHOL BULL, V133, P328, DOI 10.1037/0033-2909.133.2.328eng
hcfmusp.relation.referenceRosenberg M., 1965, SOC ADOLESCENT SELFeng
hcfmusp.relation.referenceRusch N, 2018, J NERV MENT DIS, V206, P383, DOI 10.1097/NMD.0000000000000810eng
hcfmusp.relation.referenceRusch N, 2014, BRIT J PSYCHIAT, V204, P391, DOI 10.1192/bjp.bp.113.135772eng
hcfmusp.relation.referenceRusch N, 2009, SCHIZOPHR RES, V110, P65, DOI 10.1016/j.schres.2009.01.005eng
hcfmusp.relation.referenceSARTORIUS N, 1977, PSYCHOL MED, V7, P529, DOI 10.1017/S0033291700004517eng
hcfmusp.relation.referenceSibitz I, 2007, SOC PSYCH PSYCH EPID, V42, P909, DOI 10.1007/s00127-007-0245-5eng
hcfmusp.relation.referenceSLAVINSKY AT, 1982, NURS RES, V31, P284eng
hcfmusp.relation.referenceStuart H, 2001, CAN J PSYCHIAT, V46, P245, DOI 10.1177/070674370104600304eng
hcfmusp.relation.referenceVersola-Russo JM, 2006, INT J PSYCHOSOCIAL R, V10, P89eng
hcfmusp.relation.referenceWHO, 2013, MENT HLTH ACT PLAN 2eng
hcfmusp.relation.referenceWood AM, 2008, J COUNS PSYCHOL, V55, P385, DOI 10.1037/0022-0167.55.3.385eng
hcfmusp.relation.referenceWood L, 2016, SCHIZOPHR RES, V176, P291, DOI 10.1016/j.schres.2016.05.001eng
hcfmusp.relation.referenceWood L, 2014, PSYCHIAT RES, V220, P604, DOI 10.1016/j.psychres.2014.07.012eng
hcfmusp.relation.referenceYalom I, 1995, THEORY PRACTICE GROUeng
hcfmusp.relation.referenceYanos PT, 2011, INT J GROUP PSYCHOTH, V61, P577, DOI 10.1521/ijgp.2011.61.4.576eng
hcfmusp.scopus.lastupdate2024-05-10
relation.isAuthorOfPublication505e594d-dc91-412f-b1f5-ff0dcfc506a6
relation.isAuthorOfPublicatione5114830-117e-4f3c-95a4-5feabffc15b7
relation.isAuthorOfPublication61cf90ce-de7e-4b68-935c-7aca2ea585a8
relation.isAuthorOfPublication21aaa074-b51b-4d89-a552-c9279ad94d41
relation.isAuthorOfPublicatione66f1d29-2fed-4486-a0ab-6de56f685ce8
relation.isAuthorOfPublication125dcc9f-a05a-42fd-ab1d-b6db35d2616b
relation.isAuthorOfPublication.latestForDiscovery505e594d-dc91-412f-b1f5-ff0dcfc506a6
Arquivos
Pacote Original
Agora exibindo 1 - 1 de 1
Nenhuma Miniatura disponível
Nome:
art_SETTI_Disclosing_the_diagnosis_of_schizophrenia_A_pilot_study_2019.PDF
Tamanho:
180.46 KB
Formato:
Adobe Portable Document Format
Descrição:
publishedVersion (English)
Baixar
Coleções
Artigos e Materiais de Revistas Científicas - FM/MPS
Artigos e Materiais de Revistas Científicas - HC/IPq
Artigos e Materiais de Revistas Científicas - LIM/21
Artigos e Materiais de Revistas Científicas - LIM/27