Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal

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art_KRANENBURG_Global_Application_of_the_Assessment_of_Communication_Skills_2017.PDF (738.91 KB)
Citações na Scopus
11
Tipo de produção
article
Data de publicação
2017
DOI
Scopus
Web of Science
PubMed
Título da Revista
ISSN da Revista
Título do Volume
Editora
KARGER
Autores
KRANENBURG, Laura J. C.
REERDS, Sam T. H.
COOLS, Martine
ALDERSON, Julie
MUSCARELLA, Miriam
MAGRITE, Ellie
KUIPER, Martijn
ABDELGAFFAR, Shereen
BALSAMO, Antonio
BRAUNER, Raja
Citação
HORMONE RESEARCH IN PAEDIATRICS, v.88, n.2, p.127-139, 2017
Projetos de Pesquisa
Unidades Organizacionais
Fascículo
Resumo
Background: Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents. Methods: Paediatric endocrinology fellows worldwide were invited to study two interactive online cases (www.espe-elearning.org) and to describe a best practice communication with (i) the parents of a newborn with congenital adrenal hyperplasia and (ii) a young woman with 46, XY gonadal dysgenesis. The replies were analysed regarding completeness, quality, and evidence of empathy. Guidelines for structured assessment of responses were developed by 22 senior paediatric endocrinologists worldwide who assessed 10 selected replies. Consensus of assessors was established and the evaluation guidelines were created. Results: The replies of the fellows showed considerable variation in completeness, quality of wording, and evidence of empathy. Many relevant aspects of competent clinical communication were not mentioned; 15% (case 1) and 17% (case 2) of the replies were considered poor/insufficient. There was also marked variation between 17 senior experts in the application of the guidelines to assess communication skills. The guidelines were then adjusted to a 3-level assessment with empathy as a separate key item to better reflect the qualitative differences in the replies and for simplicity of use by evaluators. Conclusions: E-learning can play an important role in assessing communication skills. A practical tool is provided to assess how information is shared with patients with DSD and their families and should be refined by all stakeholders, notably interdisciplinary health professionals and patient representatives. (C) 2017 S. Karger AG, Basel
Palavras-chave
Online learning, E-learning, Subspecialty training, Disorders of sex development, Congenital adrenal hyperplasia, Competency assessment
URI
https://observatorio.fm.usp.br/handle/OPI/21808
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Coleções
Artigos e Materiais de Revistas Científicas - FM/MCM
Artigos e Materiais de Revistas Científicas - HC/ICHC
Artigos e Materiais de Revistas Científicas - LIM/42