Health care professionals dealing with hemophilia: insights from the international qualitative study of the HERO initiative

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Citações na Scopus
4
Tipo de produção
article
Data de publicação
2019
DOI
Scopus
Web of Science
PubMed
Título da Revista
ISSN da Revista
Título do Volume
Editora
DOVE MEDICAL PRESS LTD
Autores
POTI, Silvia
PALARETI, Laura
BRONDI, Sonia
Citação
JOURNAL OF MULTIDISCIPLINARY HEALTHCARE, v.12, p.361-375, 2019
Projetos de Pesquisa
Unidades Organizacionais
Fascículo
Resumo
Background: Assessing the viewpoints of health care professionals concerning their work with chronic patients is a relatively new research topic, widely overlooked in the literature. However, understanding their subjective work experience is highly relevant for identifying problems and perceived resources, enhancing health service organisation, improving relationships or communication with patients, and maintaining well-being. Purpose and method: Qualitative data from the ""Haemophilia Experience, Results and Opportunities"" Initiative - a research program aimed at investigating the psychosocial aspects of hemophilia - were used to evaluate the experiences of 62 professionals from seven countries around the world. Semi-structured interviews were submitted to thematic analysis of elementary contexts with the aid of T-Lab software. Results: Five dominant themes emerged, identifying the main challenges that professionals have to deal with in their everyday work practice: caring for impaired adult patients; handling policies and stakeholders; providing counselling on diagnosis and reproductive choices; considering the role of family dynamics; coping with adolescent patients. Conclusion: The outcomes of the study provide an opportunity to develop the area of the non-technical skills in the core curriculum of those who work with chronic illnesses by focusing on cross-professional competences and by improving a comprehensive care model for hemophilia patients.
Palavras-chave
health care professionals, subjective experience, chronic illness, hemophilia, cross-cultural
URI
https://observatorio.fm.usp.br/handle/OPI/32572
Referências
  1. Aase M, 2008, J MED ETHICS, V34, P767, DOI 10.1136/jme.2007.023275
  2. Arranz P, 2008, MUSCULOSKELETAL ASPE, P212
  3. Asbring P, 2003, SOC SCI MED, V57, P711, DOI 10.1016/S0277-9536(02)00420-3
  4. Baker JR, 2005, AM J PUBLIC HEALTH, V95, P1910, DOI 10.2105/AJPH.2004.051318
  5. Boyce M. M., 1997, ADOLESCENCE, V33, P927
  6. Breuner CC, 2011, PEDIATRICS, V127, P163, DOI 10.1542/peds.2010-0072
  7. Brown LK, 2002, GEN HOSP PSYCHIAT, V24, P48, DOI 10.1016/S0163-8343(01)00172-4
  8. Brown LK, 1999, HAEMOPHILIA, V5, P127, DOI 10.1046/j.1365-2516.1999.00289.x
  9. Caputo A, 2014, PSYCHOL HEALTH MED, V19, P211, DOI 10.1080/13548506.2013.793372
  10. Cassis FRMY, 2012, HAEMOPHILIA, V18, pe101, DOI 10.1111/j.1365-2516.2011.02683.x
  11. CRUTCHER JE, 1980, J FAM PRACTICE, V11, P933
  12. Doise W, 1986, EUROPEAN MONOGRAPHS
  13. Dyrbye LN, 2017, NATL ACAD MED PERSP, DOI [10.31478/201707b, DOI 10.31478/201707B]
  14. Emiliani F, 2011, QUAL HEALTH RES, V21, P1667, DOI 10.1177/1049732311417456
  15. Goldstein G, 2002, HAEMOPHILIA, V8, P461, DOI 10.1046/j.1365-2516.2002.00642.x
  16. GORLIN R, 1983, NEW ENGL J MED, V308, P1059, DOI 10.1056/NEJM198305053081804
  17. Haas LJ, 2005, AM FAM PHYSICIAN, V72, P2063
  18. Kand HS, 2002, HAEMOPHILIA, V18, P892
  19. Kennedy JS, 2002, JAMA-J AM MED ASSOC, V287, P1113, DOI 10.1001/jama.287.9.1113
  20. Kyngas H, 2001, J CLIN NURS, V10, P767, DOI 10.1046/j.1365-2702.2001.00538.x
  21. Lancia F., 2004, STRUMENTI ANALISI TE
  22. Mazzoni D, 2008, PSICOLOGIA SALUTE, V2, P91
  23. Meier DE, 2001, JAMA-J AM MED ASSOC, V286, P3007, DOI 10.1001/jama.286.23.3007
  24. Montali L, 2011, PAIN MED, V12, P1585, DOI 10.1111/j.1526-4637.2011.01252.x
  25. Mulders G, 2012, HAEMOPHILIA, V18, P693, DOI 10.1111/j.1365-2516.2012.02786.x
  26. Nugent D, 2015, HAEMOPHILIA, V21, pE26, DOI 10.1111/hae.12545
  27. Palareti L, 2015, INT J QUAL STUD HEAL, V10, DOI 10.3402/qhw.v10.28915
  28. Petrini P, 2009, HAEMOPHILIA, V15, P15, DOI 10.1111/j.1365-2516.2008.01948.x
  29. Poti S, 2018, INT J ADOLESC YOUTH, V23, P133, DOI 10.1080/02673843.2017.1299017
  30. Poti Silvia, 2018, J Patient Exp, V5, P140, DOI 10.1177/2374373517738234
  31. Rodriguez-Merchan EC, 2012, HAEMOPHILIA, V18, P8, DOI 10.1111/j.1365-2516.2011.02544.x
  32. Rolstad EB, 2015, HEALTH SOC WORK, V40, P239, DOI 10.1093/hsw/hlv047
  33. Ruggieri R, 2014, EUR J PSYCHOL, V10, P79, DOI 10.5964/ejop.v10i1.625
  34. Serour M, 2009, EUROPEAN J GEN MED, V6, P1304, DOI 10.29333/ejgm/82646
  35. Shapiro J, 2011, FAM SYST HEALTH, V29, P15, DOI 10.1037/a0022921
  36. Stone L, 2014, AUST FAM PHYSICIAN, V43, P191
  37. Street A, 2012, HAEMOPHILIA, V18, P89, DOI 10.1111/j.1365-2516.2012.02876.x
  38. Taylor G, 2004, HEALTH SOC WORK, V29, P149, DOI 10.1093/hsw/29.2.149
  39. Teunissen PW, 2013, MED EDUC, V47, P1064, DOI 10.1111/medu.12228
  40. Triemstra AHM, 1998, SOC SCI MED, V47, P581, DOI 10.1016/S0277-9536(98)00117-8
  41. Vegni Elena, 2005, Commun Med, V2, P69, DOI 10.1515/come.2005.2.1.69
  42. Vegni E, 2014, J HEALTH PSYCHOL, V19, P1499, DOI 10.1177/1359105313493813
  43. Wallace JE, 2009, LANCET, V374, P1714, DOI 10.1016/S0140-6736(09)61424-0
  44. WFH, 2004, HAEMOPHILIA, V20, P1

Coleções
Artigos e Materiais de Revistas Científicas - HC/ICHC
Artigos e Materiais de Revistas Científicas - ODS/03
Artigos e Materiais de Revistas Científicas - ODS/04