The impact of stressors and overload on informal caregivers of patients with cirrhosis: The first use of the Burden Scale for Family Caregivers in Brazil
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Citações na Scopus
3
Tipo de produção
article
Data de publicação
2022
Título da Revista
ISSN da Revista
Título do Volume
Editora
SAGE PUBLICATIONS LTD
Citação
JOURNAL OF HEALTH PSYCHOLOGY, v.27, n.2, p.408-421, 2022
Resumo
Introduction: Cirrhosis affects liver functions and compromises much of the body's organs. The significant increase in chronic diseases, including cirrhosis, has led to changes in medical practice and health systems, leading the informal caregiver to play a major role because of family ties or some level of proximity to the patient, assuming daily care function. However, the burden generated by informal caregivers for uninterrupted care is present at different levels (physical, mental, social, professional, and financial) and even in the prognosis of the patient. Objective: The present study aims to evaluate the impact of stressors and overload on informal caregivers of cirrhosis patients. Method: Cross-sectional study, conducted with 54 informal caregivers of cirrhosis patients, followed up at the Liver Transplant Service Outpatient Clinic of the University of Sao Paulo School of Medicine Hospital das Clinicas, where they had access to a sociodemographic questionnaire, history of the patient's disease and the scale Burden Scale for Family Caregivers. Results: It was observed that higher levels of education and income of the caregiver correlates with a lower degree of stress. In addition, there is a significant difference found in the caregiver's age variable, which indicates that the youngest are those who have the highest degree of stress. The variable Na mEg/l of the patient also presents a statistically significant difference. Conclusion: Our study was a precursor using the BSFC scale of worldwide coverage and that had not yet been applied in any study in Brazil, thus allowing a look at the various aspects that affect the quality of life of caregivers of patients with cirrhosis. Our results and the literature corroborate the importance not only of the patient, but also the informal caregiver's health.
Palavras-chave
Burden Scale for Family Caregivers, caregivers, chronic illness, informal caregiver, liver cirrhosis
Referências
- Abdi F, 2015, GASTROENTEROL NURS, V38, P252, DOI 10.1097/SGA.0000000000000122
- [Anonymous], 2003, ESTR TAB CONV IND TI
- Antonana JM, 2001, ARCH BRONCONEUMOL, V37, P489, DOI 10.1016/S0300-2896(01)75128-9
- Asrani Sumeet K, 2013, Curr Gastroenterol Rep, V15, P308, DOI 10.1007/s11894-012-0308-y
- Bajaj JS, 2011, AM J GASTROENTEROL, V106, P1646, DOI 10.1038/ajg.2011.157
- Bastianelli A, 2016, J HEALTH PSYCHOL, V21, P844, DOI 10.1177/1359105314539533
- Blachier M, 2013, J HEPATOL, V58, P593, DOI 10.1016/j.jhep.2012.12.005
- Bolden L, 2010, ARCH PSYCHIAT NURS, V24, P89, DOI 10.1016/j.apnu.2009.04.010
- Carod-Artal FJ, 2013, PARKINSONISM RELAT D, V19, P943, DOI 10.1016/j.parkreldis.2013.06.005
- Chiu T, 2003, DEV VALIDATION BURDE
- Cohen, 1988, STAT POWER ANAL BEHA
- de Oliveira-Monteiro NR, 2018, MOJ GERONTOLOGY GERI, V3, P188
- Divajeva D, 2014, BMC PUBLIC HEALTH, V14, DOI 10.1186/1471-2458-14-456
- Donelan K, 2002, HEALTH AFFAIR, V21, P222, DOI 10.1377/hlthaff.21.4.222
- Ekwall A, 2004, SCAND J CARING SCI, V18, P239, DOI 10.1111/j.1471-6712.2004.00283.x
- Githaiga JN, 2017, J HEALTH PSYCHOL, V22, P1591, DOI 10.1177/1359105316631199
- Gresswell I, 2018, IRISH J PSYCHOL MED, V35, P43, DOI 10.1017/ipm.2017.36
- Holtzman S, 2011, J HEALTH PSYCHOL, V16, P843, DOI 10.1177/1359105310393542
- Joo JY, 2018, INT NURS REV, V65, P102, DOI 10.1111/inr.12429
- Jutten LH, 2019, INT J CLIN HLTH PSYC, V19, P12, DOI 10.1016/j.ijchp.2018.07.004
- Konerding U, 2019, AM J ALZHEIMERS DIS, V34, P148, DOI 10.1177/1533317518822047
- Konietschke F, 2015, J STAT SOFTW, V64
- Kunzler-Heule P, 2016, J CLIN NURS, V25, P2559, DOI 10.1111/jocn.13298
- Lim Jung-won, 2004, Health Qual Life Outcomes, V2, P50
- Lou Q, 2015, J CLIN NURS, V24, P2668, DOI 10.1111/jocn.12870
- Low JTS, 2018, J HEPATOL, V69, P1260, DOI 10.1016/j.jhep.2018.08.028
- Martinez-Martin P, 2006, MOVEMENT DISORD, V21, P208, DOI 10.1002/mds.20697
- McCullagh E, 2005, STROKE, V36, P2181, DOI 10.1161/01.STR.0000181755.23914.53
- Miyazaki ET, 2010, LIVER TRANSPLANT, V16, P1164, DOI 10.1002/lt.22130
- Monteiro Edilene Araújo, 2015, Rev. Bras. Enferm., V68, P421, DOI 10.1590/0034-7167.2015680307i
- Meyer ALM, 2009, CLINICS, V64, P877, DOI 10.1590/S1807-59322009000900008
- Nguyena DL, 2015, ANN GASTROENTEROL, V28, P124
- Pereira JCRPP-SP, 2010, BIOESTATISTICA OUTRA
- Rakoski MO, 2012, HEPATOLOGY, V55, P184, DOI 10.1002/hep.24616
- Sautter JM, 2014, J AM GERIATR SOC, V62, P1082, DOI 10.1111/jgs.12841
- Scazufca M, 2002, SOC PSYCH PSYCH EPID, V37, P416, DOI 10.1007/s00127-002-0571-6
- Serra Desfilis E, 1998, ANALES PSICOLOGIA, V14, P215
- Siegel S. CN, 1998, NONPARAMETRIC STAT
- Silva ISS, 2011, REV BRASILEIRA EDUCA, DOI [10.1590/S1413-24782011000200001, DOI 10.1590/S1413-24782011000200001]
- Valery PC, 2015, BMJ OPEN, V5, DOI 10.1136/bmjopen-2014-007451
- Vedhara K, 2000, PSYCHOSOM MED, V62, P374, DOI 10.1097/00006842-200005000-00011
- Yikilkan H, 2014, ARCH PSYCHIAT NURS, V28, P193, DOI 10.1016/j.apnu.2014.01.001