Disclosing the diagnosis of schizophrenia: A pilot study of the 'Coming Out Proud' intervention

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art_SETTI_Disclosing_the_diagnosis_of_schizophrenia_A_pilot_study_2019.PDF (180.46 KB)
Citações na Scopus
13
Tipo de produção
article
Data de publicação
2019
DOI
Scopus
Web of Science
PubMed
Título da Revista
ISSN da Revista
Título do Volume
Editora
SAGE PUBLICATIONS LTD
Autores
HUNGERBUEHLER, Ines
ROESSLER, Wulf
Citação
INTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY, v.65, n.3, p.244-251, 2019
Projetos de Pesquisa
Unidades Organizacionais
Fascículo
Resumo
Background: Schizophrenia is one of the most stigmatized psychiatric disorders, and disclosing it is often a source of stress to individuals with the disorder. The Coming Out Proud (COP) group intervention is designed to reduce the stigma's negative impact and help participants decide if they want to disclose their disorder. Aims: To assess the effect of the COP intervention in individuals with the diagnosis of schizophrenia. Methods: A pilot study of 3 2-hour group lessons (6-12 participants) per week. Individuals were selected from three specialized outpatient services in Sao Paulo, Brazil; 46 people were willing to participate, 11 dropped out during the intervention and 4 were excluded due to low intelligence quotient (IQ), resulting in a final sample of 31 participants. Outcomes were assessed before (T0/baseline) and after (T1/directly) after the COP intervention, and at 3-week follow-up (T2/3 weeks after T1). We applied eight scales, of which four scales are analyzed in this article (Coming Out with Mental Illness Scale (COMIS), Cognitive Appraisal of Stigma as a Stressor (CogApp), Self-Stigma of Mental Illness Scale-Short Form (SSMIS) and Perceived Devaluation-Discrimination Questionnaire (PDDQ)). Results: People who completed the COP intervention showed a significant increase in the decision to disclose their diagnosis (22.5% in T0 vs 67.7% in T2). As to the perception of stigma as a stressor, mean values significantly increased after the intervention (T0 = 3.83, standard deviation (SD) = .92 vs T2 = 4.44, SD = 1.05; p = .006). Two results had marginal significance: self-stigma was reduced (T0 = 3.10, SD = 1.70 vs T2 = 2.73, SD = 1.87; p = .063), while perceived discrimination increased (T0 = 2.68, SD = .55 vs T2 = 2.93, SD = .75; p = .063). Conclusion: This study suggests that the COP group intervention facilitated participants' disclosure decisions, and the increasing awareness of stigma as a stressor in life may have facilitated their decision to eventually disclose their disorder. The results raise questions that require further analysis, taking sociocultural factors into account, as stigma is experienced differently across cultures.
Palavras-chave
Schizophrenia, prejudice, social stigma, mental health, stigma and schizophrenia
URI
https://observatorio.fm.usp.br/handle/OPI/32522
Referências
  1. Alexander LA, 2003, J MENTAL HLTH, V12, P271, DOI 10.1080/0963823031000118267
  2. American Psychiatric Association, 2013, DIAGNOSTIC STAT MANU
  3. Angermeyer Matthias C, 2002, World Psychiatry, V1, P21
  4. Angermeyer MC, 2006, ACTA PSYCHIAT SCAND, V113, P163, DOI 10.1111/j.1600-0447.2005.00699.x
  5. Angermeyer MC, 2004, ACTA PSYCHIAT SCAND, V109, P420, DOI 10.1111/j.1600-0047.2004.00310.x
  6. Bhugra D, 2005, PLOS MED, V2, P372, DOI 10.1371/journal.pmed.0020151
  7. Clement S, 2012, BMC PSYCHIATRY, V12, DOI 10.1186/1471-244X-12-36
  8. Corrigan P. W., 2014, COMING OUT PROUD ELI
  9. Corrigan P. W., 2004, BEAT STIGMA DISCRIMI
  10. Corrigan PW, 2006, J SOC CLIN PSYCHOL, V25, P875, DOI 10.1521/jscp.2006.25.8.875
  11. Corrigan PW, 2015, PSYCHIAT RES, V229, P148, DOI 10.1016/j.psychres.2015.07.053
  12. Corrigan PW, 2012, PSYCHIAT RES, V199, P65, DOI 10.1016/j.psychres.2012.04.009
  13. Corrigan PW, 2010, J COMMUNITY PSYCHOL, V38, P259, DOI 10.1002/jcop.20363
  14. Corrigan PW, 2002, CLIN PSYCHOL-SCI PR, V9, P35, DOI 10.1093/clipsy/9.1.35
  15. Crisp Arthur, 2005, World Psychiatry, V4, P106
  16. Dinos S, 2004, BRIT J PSYCHIAT, V184, P176, DOI 10.1192/bjp.184.2.176
  17. Hengartner MP, 2012, REV PSIQ CLIN-BRAZIL, V39, P115
  18. KARNO M, 1987, J NERV MENT DIS, V175, P143, DOI 10.1097/00005053-198703000-00004
  19. Knight MTD, 2006, BEHAV COGN PSYCHOTH, V34, P305, DOI 10.1017/S1352465805002705
  20. LEHMAN AF, 1988, EVAL PROGRAM PLANN, V11, P51, DOI 10.1016/0149-7189(88)90033-X
  21. LINK BG, 1989, AM SOCIOL REV, V54, P400, DOI 10.2307/2095613
  22. LINK BG, 1991, J HEALTH SOC BEHAV, V32, P302, DOI 10.2307/2136810
  23. Loch A. A., 2013, THESIS
  24. Lopez SR, 2004, J ABNORM PSYCHOL, V113, P428, DOI 10.1037/0021-843x.113.3.428
  25. Lucksted A, 2011, PSYCHIATR REHABIL J, V35, P51, DOI 10.2975/35.1.2011.51.54
  26. Lundberg B, 2008, INT J SOC PSYCHIATR, V54, P47, DOI 10.1177/0020764007082345
  27. Oliveira SEH, 2015, PSYCHIAT RES, V229, P167, DOI 10.1016/j.psychres.2015.07.047
  28. Pachankis JE, 2007, PSYCHOL BULL, V133, P328, DOI 10.1037/0033-2909.133.2.328
  29. Rosenberg M., 1965, SOC ADOLESCENT SELF
  30. Rusch N, 2018, J NERV MENT DIS, V206, P383, DOI 10.1097/NMD.0000000000000810
  31. Rusch N, 2014, BRIT J PSYCHIAT, V204, P391, DOI 10.1192/bjp.bp.113.135772
  32. Rusch N, 2009, SCHIZOPHR RES, V110, P65, DOI 10.1016/j.schres.2009.01.005
  33. SARTORIUS N, 1977, PSYCHOL MED, V7, P529, DOI 10.1017/S0033291700004517
  34. Sibitz I, 2007, SOC PSYCH PSYCH EPID, V42, P909, DOI 10.1007/s00127-007-0245-5
  35. SLAVINSKY AT, 1982, NURS RES, V31, P284
  36. Stuart H, 2001, CAN J PSYCHIAT, V46, P245, DOI 10.1177/070674370104600304
  37. Versola-Russo JM, 2006, INT J PSYCHOSOCIAL R, V10, P89
  38. WHO, 2013, MENT HLTH ACT PLAN 2
  39. Wood AM, 2008, J COUNS PSYCHOL, V55, P385, DOI 10.1037/0022-0167.55.3.385
  40. Wood L, 2016, SCHIZOPHR RES, V176, P291, DOI 10.1016/j.schres.2016.05.001
  41. Wood L, 2014, PSYCHIAT RES, V220, P604, DOI 10.1016/j.psychres.2014.07.012
  42. Yalom I, 1995, THEORY PRACTICE GROU
  43. Yanos PT, 2011, INT J GROUP PSYCHOTH, V61, P577, DOI 10.1521/ijgp.2011.61.4.576

Coleções
Artigos e Materiais de Revistas Científicas - FM/MPS
Artigos e Materiais de Revistas Científicas - HC/IPq
Artigos e Materiais de Revistas Científicas - LIM/21
Artigos e Materiais de Revistas Científicas - LIM/27